Sickle Cell Disease Community
Together, We Can Improve Lives
SCD Community Resources
Clinical trials are an important step in finding new and improved ways to identify and treat diseases. In fact, all of the medications and treatments available to us today have been tested as part of a clinical research study or clinical trial. By participating in a clinical trial for sickle cell disease (SCD), you could help researchers learn more about disease and create new treatments that can improve the lives of people with SCD.
The ASH Research Collaborative™ Sickle Cell Disease Clinical Trials Network helps educate the SCD community about clinical trials. We’ve created a number of resources to help inform participants and their caregivers about why clinical trials are important, and how they can get involved.
Why Participate in Clinical Trials for Sickle Cell Disease
If you are new to clinical research or would like some additional information on clinical trials please download the
Why Participate in Clinical Trials for Sickle Cell Disease Brochure.
Gene Therapy for Sickle Cell Disease
The Promise of Gene Therapy
Gene therapy and gene editing may offer a one-time treatment that addresses the genetic cause of sickle cell disease.
ASH RESEARCH COLLABORATIVE
The ASH Research Collaborative (ASH RC) is a non-profit organization established by the American Society of Hematology (ASH) in 2018 to improve the lives of people affected by blood diseases by fostering collaborative partnerships to accelerate progress in hematology.