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ASH Research Collaborative and Reagan-Udall Foundation for the FDA Launch Sickle Cell Disease Real-World Data Project

The ASH Research Collaborative (ASH RC) and the Reagan-Udall Foundation for the Food and Drug Administration (FDA Foundation) are launching the Real-World Evidence Consortium for Sickle Cell Disease (SCD) to develop consensus recommendations on clinical outcomes important to treating people with SCD and apply those standards to real-world data sets.

Sickle Cell Disease Learning Community Launches

The American Society of Hematology and the ASH RC are happy to announce the launch of the Pilot Sickle Cell Disease Learning Community.  The Sickle Cell Disease Learning Community is focused on improving the care and outcomes of people living with Sickle Cell Disease through the adoption of evidence informed best practices.

GBT Supports the ASH Research Collaborative’s Data Hub Sickle Cell Disease Program

Grant of $400,000 to help expand sickle cell disease real-world data gathering in the U.S.

ASH Research Collaborative Announces First Ten Clinical Trial Consortia to Join the Sickle Cell Disease Clinical Trials Network

The ASH Research Collaborative (ASH RC) has announced the first 10 clinical research consortia to join the ASH RC Sickle Cell Disease Clinical Trials Network.

New Toolkit Aims to Improve Quality of Thrombosis Data Collected in COVID-19 Clinical Trials

The ASH Research Collaborative and International Society on Thrombosis and Haemostasis Define Thrombosis-Related Endpoints to Inform COVID-19 Clinical Trial Design.

Certain People with Blood Cancers and COVID-19 Infection Vulnerable to Severe Illness, Death

A study of 656 people with various types of blood cancers who also had COVID-19 infection found that one out of five had died between April and November, based on an analysis of data from the ASH Research Collaborative COVID-19 Registry for Hematology.

HHS Office of Minority Health Announces $1 Million Award to Develop National Sickle Cell Disease Data Collection System

The Office of Minority Health (OMH) at the U.S. Department of Health and Human Services (HHS) announced today an approximately $1,000,000 grant to the American Society of Hematology (ASH) to develop and implement a national sickle cell disease (SCD) clinical data collection platform.

ASH RC President Comments on Sickle Cell Disease Report from the National Academies of Sciences, Engineering, and Medicine

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.

ASH/ASH RC/CMSS Statement on Racism in Healthcare

The American Society of Hematology and ASH Research Collaborative stand in unity with the Council of Medicine Specialty Societies (CMSS) and the 800,000 physicians across 45 medical specialties that deplore the negative impact of racism in our nation and of racial inequities in our healthcare system. 

ASH Research Collaborative COVID-19 Registry for Hematologic Malignancy Reaches Milestone of 100 Patient Cases

The ASH Research Collaborative (ASH RC) COVID-19 Registry for Hematologic Malignancy has reached the critical milestone of surpassing its first 100 clinical cases submitted.