Sickle Cell Disease

Tag Archive for: Sickle Cell Disease

ASH Research Collaborative and Reagan-Udall Foundation for the FDA Launch Sickle Cell Disease Real-World Data Project

The ASH Research Collaborative (ASH RC) and the Reagan-Udall Foundation for the Food and Drug Administration (FDA Foundation) are launching the Real-World Evidence Consortium for Sickle Cell Disease (SCD) to develop consensus recommendations on clinical outcomes important to treating people with SCD and apply those standards to real-world data sets.

Sickle Cell Disease Learning Community Launches

The American Society of Hematology and the ASH RC are happy to announce the launch of the Pilot Sickle Cell Disease Learning Community.  The Sickle Cell Disease Learning Community is focused on improving the care and outcomes of people living with Sickle Cell Disease through the adoption of evidence informed best practices.

GBT Supports the ASH Research Collaborative’s Data Hub Sickle Cell Disease Program

Grant of $400,000 to help expand sickle cell disease real-world data gathering in the U.S.

ASH Research Collaborative Announces First Ten Clinical Trial Consortia to Join the Sickle Cell Disease Clinical Trials Network

The ASH Research Collaborative (ASH RC) has announced the first 10 clinical research consortia to join the ASH RC Sickle Cell Disease Clinical Trials Network.

New Toolkit Aims to Improve Quality of Thrombosis Data Collected in COVID-19 Clinical Trials

The ASH Research Collaborative and International Society on Thrombosis and Haemostasis Define Thrombosis-Related Endpoints to Inform COVID-19 Clinical Trial Design.

HHS Office of Minority Health Announces $1 Million Award to Develop National Sickle Cell Disease Data Collection System

The Office of Minority Health (OMH) at the U.S. Department of Health and Human Services (HHS) announced today an approximately $1,000,000 grant to the American Society of Hematology (ASH) to develop and implement a national sickle cell disease (SCD) clinical data collection platform.

ASH RC President Comments on Sickle Cell Disease Report from the National Academies of Sciences, Engineering, and Medicine

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.

First Industry Datasets Submitted to ASH Research Collaborative Data Hub

The ASH Research Collaborative (ASH RC) has collaborated with two industry leaders, Novartis Pharmaceuticals Corporation (Novartis) and Amgen, to include de-identified patient data from three separate studies of nearly 500 patients living with Sickle Cell Disease (SCD) and more than 1,000 patients with multiple myeloma as part of an unprecedented data sharing initiative.

Inside a Patient Centered Approach to Treating Sickle Cell Disease

The ASH Research Collaborative’s Sickle Cell Disease (SCD) Clinical Trials Network (CTN) patient-centered approach was recently featured in Media Planet’s Clinical Trials issue.

The Hematologist: The Sickle Cell Clinical Trials Network: One Year In

The ASH Research Collaborative Leadership provides a progress report on the development of the Sickle Cell Disease Clinical Trials Network.