The Data Hub
A Source for Real-World Hematology Data
The Data Hub is helping accelerate progress beyond what has ever been possible for people with blood diseases. These data can have broad use, such as informing research studies, supporting new drug development, and enhancing quality improvement initiatives.
The Data Hub is currently collecting data on sickle cell disease (SCD) and multiple myeloma, with plans to expand to additional hematologic conditions.
Sites that submit data to the Data Hub have access to reports and analysis of their own data, as well as de-identified, aggregate-level data from all participating sites. Learn about the Data Hub’s SCD and Multiple Myeloma Programs.
Sites participating in the Data Hub’s SCD Program are also invited to take part in the SCD Learning Community, a learning network that uses insights gained from longitudinal data in the Data Hub to tackle challenges in clinical practice. Working together to improve as a community accelerates the pace of change for all those affected by SCD. Learn more about the SCD Learning Community.
The ASH Research Collaborative™ joined federal partners and other stakeholders to explore recommended methods for coordinating clinically relevant and reliable real-world data for genomic therapies for genetic blood disorders. Learn more about the Real-World Evidence Initiative.