The Data Hub
A Source for Real-World Hematology Data
Transforming Data Into Knowledge
The Data Hub helps researchers, clinicians, regulators, industry, and other stakeholders turn real-world Data Hub data into actionable insights to improve outcomes for individuals living with hematologic conditions.
Specifically, the Data Hub helps to:
- Monitor near real-time, longitudinal metrics.
- Identify cohort populations for research studies and clinical trials.
- Perform custom analyses of real-world patient populations.
- Generate hypotheses for observational research.
- Access contemporaneous control groups for research studies.
Investigators from participating sites may submit research requests to use Data Hub data during the Call for Research periods. Investigators with approved research requests are partnered with a statistician to support their data analysis needs.
The ASH Research Collaborative® (ASH RC) welcomes Data Hub Research Requests at any time for sponsored research projects.
To learn more about using Data Hub data for research:
Submit Data Hub Research Requests to info@ashrc.org.
Published Research
| PROGRAM | TYPE | YEAR | TITLE | PRIMARY AUTHOR | PUBLICATION |
|---|---|---|---|---|---|
| SCD Research Network | Manuscript | 2023 | New ASH initiatives to improve patient care in the long-overlooked sickle cell disease | Venèe N. Tubman | Blood |
| ASH RC | Manuscript | 2021 | ASH Research Collaborative: a real-world data infrastructure to support real-world evidence development and learning healthcare systems in hematology | William Wood | Blood Advances |
| COVID-19 Registry | Abstract | 2021 | Clinical Predictors of Outcome in Adult Patients with Acute Leukemias and Myelodysplastic Syndrome and COVID-19 Infection: Report from the American Society of Hematology Research Collaborative (ASH RC) Data Hub | Pinkal Desai / Aaron Goldbery | ASH Annual Meeting (Blood) |
| COVID-19 Registry | Abstract | 2021 | Risks for Hospitalization and Death Among Patients with Blood Disorders from the ASH RC COVID-19 Registry for Hematology | Lisa Hicks | ASH Annual Meeting (Blood) |
| COVID-19 Registry | Manuscript | 2020 | Outcomes of Patients with Hematologic Malignancies and COVID-19 Infection: A Report from the American Society of Hematology Research Collaborative (ASH RC) Data Hub | William Wood | Blood Advances |
| COVID-19 Registry | Manuscript | 2020 | A Toolkit for the Collection of Important Thrombosis-Related Data Elements in COVID-19 Clinical Trials | Deborah Siegal | Blood Advances |
Process Overview
Once the application portal for research and analytic requests is open, the process involves these steps.
ASH RESEARCH COLLABORATIVE
The ASH Research Collaborative (ASH RC) is a non-profit organization established by the American Society of Hematology (ASH) in 2017 to improve the lives of people affected by blood diseases by fostering collaborative partnerships to accelerate progress in hematology. Learn more about ASH RC