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Press Releases · News · Events

The ASH Research Collaborative™ regularly issues press releases and hosts events and webinars highlighting the work of the Data Hub and Sickle Cell Disease Clinical Trials Network.

At this time, we do not have any events or webinars scheduled, but please check back soon or sign up to be notified of upcoming events and webinars. If you need to speak to an expert, contact us.

Press Releases

ASH Research Collaborative and Reagan-Udall Foundation for the FDA Launch Sickle Cell Disease Real-World Data Project

April 17, 2024

The ASH Research Collaborative (ASH RC) and the Reagan-Udall Foundation for the Food and Drug Administration (FDA Foundation) are launching the Real-World Evidence Consortium for Sickle Cell Disease (SCD) to develop consensus recommendations on clinical outcomes important to treating people with SCD and apply those standards to real-world data sets.

GBT Supports the ASH Research Collaborative’s Data Hub Sickle Cell Disease Program

December 2, 2021

Grant of $400,000 to help expand sickle cell disease real-world data gathering in the U.S.

ASH Research Collaborative Announces First Ten Clinical Trial Consortia to Join the Sickle Cell Disease Clinical Trials Network

August 16, 2021

The ASH Research Collaborative (ASH RC) has announced the first 10 clinical research consortia to join the ASH RC Sickle Cell Disease Clinical Trials Network.

New Toolkit Aims to Improve Quality of Thrombosis Data Collected in COVID-19 Clinical Trials

December 17, 2020

The ASH Research Collaborative and International Society on Thrombosis and Haemostasis Define Thrombosis-Related Endpoints to Inform COVID-19 Clinical Trial Design.

Certain People with Blood Cancers and COVID-19 Infection Vulnerable to Severe Illness, Death

December 5, 2020

A study of 656 people with various types of blood cancers who also had COVID-19 infection found that one out of five had died between April and November, based on an analysis of data from the ASH Research Collaborative COVID-19 Registry for Hematology.

ASH RC President Comments on Sickle Cell Disease Report from the National Academies of Sciences, Engineering, and Medicine

September 9, 2020

Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.

ASH/ASH RC/CMSS Statement on Racism in Healthcare

June 1, 2020

The American Society of Hematology and ASH Research Collaborative stand in unity with the Council of Medicine Specialty Societies (CMSS) and the 800,000 physicians across 45 medical specialties that deplore the negative impact of racism in our nation and of racial inequities in our healthcare system. 

ASH Research Collaborative COVID-19 Registry for Hematologic Malignancy Reaches Milestone of 100 Patient Cases

May 13, 2020

The ASH Research Collaborative (ASH RC) COVID-19 Registry for Hematologic Malignancy has reached the critical milestone of surpassing its first 100 clinical cases submitted.

PCOR-2-FHIR Data Transfer Successfully Performed

April 2, 2020

The Center for Health Information Partnerships (CHIP), the ASH Research Collaborative (ASH RC), and Prometheus Research have collaborated to develop a “communicator” between two nationwide health data standards.

ASH Research Collaborative’s Data Hub Creates International Data Registry to Help Inform Care for People with Blood Cancers and COVID-19

April 1, 2020

A global registry for COVID-19 cases.

First Industry Datasets Submitted to ASH Research Collaborative Data Hub

December 4, 2019

The ASH Research Collaborative (ASH RC) has collaborated with two industry leaders, Novartis Pharmaceuticals Corporation (Novartis) and Amgen, to include de-identified patient data from three separate studies of nearly 500 patients living with Sickle Cell Disease (SCD) and more than 1,000 patients with multiple myeloma as part of an unprecedented data sharing initiative.

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News

Inaugural Members Appointed to ASH RC Board of Directors

July 3, 2024

Sickle Cell Disease Learning Community Launches

February 25, 2022

The American Society of Hematology and the ASH RC are happy to announce the launch of the Pilot Sickle Cell Disease Learning Community. The Sickle Cell Disease Learning Community is focused on improving the care and outcomes of people living with Sickle Cell Disease through the adoption of evidence informed best practices.

HHS Office of Minority Health Announces $1 Million Award to Develop National Sickle Cell Disease Data Collection System

October 1, 2020

The Office of Minority Health (OMH) at the U.S. Department of Health and Human Services (HHS) announced today an approximately $1,000,000 grant to the American Society of Hematology (ASH) to develop and implement a national sickle cell disease (SCD) clinical data collection platform.

ACN: ASH Research Collaborative Data Hub Launches COVID-19 Registry for Hematology

May 1, 2020

ASH Clinical News recently covered the launch of the ASH RC Data Hub COVID-19 Registry.

ASCO Post: William A. Wood, MD, MPH, on the New ASH Research Collaborative Data Hub COVID-19 Registry for Hematologic Malignancy

April 10, 2020

The Data Hub’s Oversight Group Chair, Dr. William Wood, was recently interviewed by the ASCO Post about the ASH RC Data Hub COVID-19 Registry for Hematologic Malignancy.

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Events

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News & Events

Press Releases · News · Events

Press Releases

ASH Research Collaborative and Reagan-Udall Foundation for the FDA Launch Sickle Cell Disease Real-World Data Project

GBT Supports the ASH Research Collaborative’s Data Hub Sickle Cell Disease Program

ASH Research Collaborative Announces First Ten Clinical Trial Consortia to Join the Sickle Cell Disease Clinical Trials Network

New Toolkit Aims to Improve Quality of Thrombosis Data Collected in COVID-19 Clinical Trials

Certain People with Blood Cancers and COVID-19 Infection Vulnerable to Severe Illness, Death

ASH RC President Comments on Sickle Cell Disease Report from the National Academies of Sciences, Engineering, and Medicine

ASH/ASH RC/CMSS Statement on Racism in Healthcare

ASH Research Collaborative COVID-19 Registry for Hematologic Malignancy Reaches Milestone of 100 Patient Cases

PCOR-2-FHIR Data Transfer Successfully Performed

ASH Research Collaborative’s Data Hub Creates International Data Registry to Help Inform Care for People with Blood Cancers and COVID-19

First Industry Datasets Submitted to ASH Research Collaborative Data Hub

News

Inaugural Members Appointed to ASH RC Board of Directors

Sickle Cell Disease Learning Community Launches

HHS Office of Minority Health Announces $1 Million Award to Develop National Sickle Cell Disease Data Collection System

ACN: ASH Research Collaborative Data Hub Launches COVID-19 Registry for Hematology

ASCO Post: William A. Wood, MD, MPH, on the New ASH Research Collaborative Data Hub COVID-19 Registry for Hematologic Malignancy

Healio: Data Registry to Guide Care for Patients with COVID-19, Blood Cancers

The Hematologist: Update on the ASH Research Collaborative Data Hub

Inside a Patient Centered Approach to Treating Sickle Cell Disease

The Hematologist: The Sickle Cell Clinical Trials Network: One Year In

HemOncToday: ASH launches sickle cell disease clinical trials network to accelerate therapy development

ACN: ASH to Launch SCD Clinical Trials Network

The Hematologist: Putting In the (Net)Work to Cure SCD

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