Disclaimer:The clinical research resources that were developed externally are provided for reference. Please note that the ASH Research Collaborative does not endorse, nor is it responsible for, the content of these resources.
Resources
Clinical Trials 101: The Basics
Welcome to the “Clinical Trials 101: The Basics” resource library. This page provides essential resources to help you learn about clinical trials, covering key concepts and important information to aid your understanding and decision-making process.
From Idea to Impact: The Lifecycle of a Clinical Study
November 19, 2025, ASH Research Collaborative
This video explains how a research study is created from beginning to end.
This PDF shares common clinical trials myths and facts.
Understanding Ethical Standards in Research
Welcome to the “Understanding Ethical Standards in Research” resource library. This page provides essential resources to help you learn about the ethical principles and standards that protect participants in research, ensuring their safety, privacy, and rights.
Checks and Balances: Keeping Sickle Cell Research Safe
November 19, 2025, ASH Research Collaborative
This video explains how the checks and balances in place to keep sickle cell research safe.
This video provides basic information about informed consent and what information you’ll get to help you decide whether to volunteer for a research study.
Welcome to the “Exploring Clinical Trials: Insights, Stories, and Resources” resource library. This page offers various materials to provide valuable perspectives on participating in clinical trials. Explore personal stories, expert insights, and practical resources to guide your journey in understanding and considering clinical trial participation.
How Sickle Cell Disease Clinical Research Helps to Reduce Bias
November 19, 2025, ASH Research Collaborative
This video explains how the outcomes of sickle cell disease clinical research can help to reduce medical bias.
Español: Cómo la Investigación de la Enfermedad de Células Falciformes Ayuda a Reducir el Prejuicio ( Vídeo | PDF)
November 19, 2025, ASH Research Collaborative
Este vídeo explica cómo los resultados de la investigación clínica sobre la enfermedad de células falciformes pueden ayudar a reducir los sesgos médicos.
Why Join Clinical Trials for Sickle Cell Disease?
February 5, 2025, ASH Research Collaborative
This video explains the importance of participating in clinical trials for sickle cell disease.
This video emphasizes that participating in research is voluntary and encourages potential participants to ask questions and get the information they need to decide whether to participate.
Researcher Story: Why Participate in Clinical Research?
Juliana Ejedoghaobi was born with sickle cell anemia, a condition in which the body’s red blood cells are sickle shaped. It slows or blocks blood flow to parts of the body, causing intense pain called “crisis.” Hear Juliana tell her story about how participating in a clinical trial saved her life.
Nicholas was diagnosed with sickle cell disease soon after he was born, and he overcame numerous health obstacles throughout his childhood. Watch this video to hear Nicholas and his mother, Bridget, discuss how Nicholas manages his disease, allowing him to live a fulfilling life as a teenager.
