ASH Research Collaborative News

Automated Approach Uses ASH RC Data to Classify Sickle Cell Disease by Similar Genotype

A new study based on multi-site data from the ASH Research Collaborative (ASH RC) Data Hub showcases an automated approach to subclassifying similar genotypes of sickle cell disease using data from electronic health records.

Real-World Analysis of Voxelotor Outcomes Finds No Clear Sign of Harm, But No Real Benefits

New data finds that the sickle cell drug voxelotor was not associated with any clear indicator of harm to patients, but had limited benefits overall. The findings were based on data pulled from the ASH Research Collaborative (ASH RC) Data Hub.

Using Conventional Definitions, Some High-Risk Multiple Myeloma Patients May Be Missed

Research using data from the ASH Research Collaborative (ASH RC) Data Hub aims to define “functional high-risk” multiple myeloma, suggesting that newly diagnosed patients whose disease progresses within 30 months of a triplet or quadruplet drug regimen have poorer outcomes than those who progress after 30 months.

Artificial Intelligence Accurately Predicts Chronic Kidney Disease in Individuals with Sickle Cell Disease

New research showcases a first-of-its-kind artificial intelligence algorithm to examine the dynamics underlying chronic kidney disease in individuals living with sickle cell disease. The algorithm employed data from the ASH Research Collaborative (ASH RC) Data Hub.

Clinical Trial Literacy Gaps Exist Among Lived Experience Experts

The ASH Research Collaborative (ASH RC) conducted research among individuals involved in its national and local sickle cell disease community advisory boards (CABs) to assess clinical trial literacy, and found that even among engaged advocates, there were knowledge gaps about clinical trials.

ASH Research Collaborative Multiple Myeloma Data Hub Award

The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

Study Finds Potential Protective Uric Acid Range in Individuals with Sickle Cell Disease

The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

Novel Technique Preserves Patient Privacy and Data Integrity Across Sickle Cell Disease Registries

The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

Social Disadvantage May Drive Difference in Myeloma Outcomes

The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

Study Finds Association Between Increased Proteins in Urine and Venous Thromboembolism in Individuals With Sickle Cell Disease

The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.