ASH Research Collaborative News

ASH Research Collaborative’s Real-World Evidence Consortium for SCD Goes Live with Duke Clinical Research Institute

Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

An Agenda for Sickle Cell Disease Research That Encompasses Lived Experience

Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

Request for Applications (RFA) Open

The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.

Filing the Gaps: The Urgent Need for Sickle Cell Disease Data

Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

ASH RC Data Hub’s Multiple Myeloma Program Accelerates Research

The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.

Innovative ASH RC Study Quickly, Effectively Generates COVID-19 Data in Patients with Multiple Myeloma

An innovative study of patients with multiple myeloma rapidly accrued a diverse cohort, demonstrated high consent/adherence rates, and assessed COVID-19 outcomes and their impact on quality of life. The research was presented at the 66th American Society of Hematology (ASH) Annual Meeting and Exposition in San Diego, California, and online.

ASH RC Data Hub Accurately Confirms SCD Diagnosis Type

The ASH Research Collaborative (ASH RC) Data Hub, which was developed to facilitate research and quality improvement through real-world data, accurately correlates sickle cell disease (SCD) genotype with verified diagnoses, validating existing and future clinical data in the ASH RC’s Data Hub, according to new research presented today at the 66th ASH Annual Meeting and Exposition.

ASH Research Collaborative to Present Data at 66th ASH Annual Meeting and Exposition

Presentations highlight how real-world data accelerate research and improve hematology care.

Notice of Upcoming Request for Applications (RFA)

The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.

Inaugural Members Appointed to ASH RC Board of Directors

The ASH Research Collaborative® (ASH RC) is proud to announce its Board of Directors, a diverse group of hematologists and data, health systems, and informatics experts committed to advancing critical research and accelerating positive change for people living with hematologic conditions.