Disease-Modifying Therapies Remain Underused in SCD Despite Safety and Efficacy
ASH Research Collaborative study finds that only one-quarter of patients living with SCD are prescribed a DMT
ASH Research Collaborative Press Releases
ASH Research Collaborative and Reagan-Udall Foundation for the FDA Launch Sickle Cell Disease Real-World Data Project
The ASH Research Collaborative (ASH RC) and the Reagan-Udall Foundation for the Food and Drug Administration (FDA Foundation) are launching the Real-World Evidence Consortium for Sickle Cell Disease (SCD) to develop consensus recommendations on clinical outcomes important to treating people with SCD and apply those standards to real-world data sets.
GBT Supports the ASH Research Collaborative’s Data Hub Sickle Cell Disease Program
Grant of $400,000 to help expand sickle cell disease real-world data gathering in the U.S.
ASH Research Collaborative Announces First Ten Clinical Trial Consortia to Join the Sickle Cell Disease Clinical Trials Network
The ASH Research Collaborative (ASH RC) has announced the first 10 clinical research consortia to join the ASH RC Sickle Cell Disease Clinical Trials Network.
New Toolkit Aims to Improve Quality of Thrombosis Data Collected in COVID-19 Clinical Trials
The ASH Research Collaborative and International Society on Thrombosis and Haemostasis Define Thrombosis-Related Endpoints to Inform COVID-19 Clinical Trial Design.
Certain People with Blood Cancers and COVID-19 Infection Vulnerable to Severe Illness, Death
A study of 656 people with various types of blood cancers who also had COVID-19 infection found that one out of five had died between April and November, based on an analysis of data from the ASH Research Collaborative COVID-19 Registry for Hematology.
ASH RC President Comments on Sickle Cell Disease Report from the National Academies of Sciences, Engineering, and Medicine
Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action.
ASH/ASH RC/CMSS Statement on Racism in Healthcare
The American Society of Hematology and ASH Research Collaborative stand in unity with the Council of Medicine Specialty Societies (CMSS) and the 800,000 physicians across 45 medical specialties that deplore the negative impact of racism in our nation and of racial inequities in our healthcare system.
ASH Research Collaborative COVID-19 Registry for Hematologic Malignancy Reaches Milestone of 100 Patient Cases
The ASH Research Collaborative (ASH RC) COVID-19 Registry for Hematologic Malignancy has reached the critical milestone of surpassing its first 100 clinical cases submitted.
PCOR-2-FHIR Data Transfer Successfully Performed
The Center for Health Information Partnerships (CHIP), the ASH Research Collaborative (ASH RC), and Prometheus Research have collaborated to develop a “communicator” between two nationwide health data standards.
ASH RESEARCH COLLABORATIVE
The ASH Research Collaborative (ASH RC) is a non-profit organization established by the American Society of Hematology (ASH) in 2017 to improve the lives of people affected by blood diseases by fostering collaborative partnerships to accelerate progress in hematology. Learn more about ASH RC