ASH Research Collaborative Announces New Board Leadership and New Directors
The ASH Research Collaborative (ASH RC) welcomes new directors to its Board of Directors and announces updates to Board leadership, effective January 1, 2026.
Entries by admin
ASH Research Collaborative Selects Five Recipients of SCD Data Hub Award
Five early-career investigators are the recipients of the ASH RC SCD Data Hub Award, which is designed to support the next generation of SCD researchers. Under this award, advanced career SCD researchers will partner with and serve as dedicated mentors to early career investigators through every stage of project development, from concept to study completion.
Automated Approach Uses ASH RC Data to Classify Sickle Cell Disease by Similar Genotype
A new study based on multi-site data from the ASH Research Collaborative (ASH RC) Data Hub showcases an automated approach to subclassifying similar genotypes of sickle cell disease using data from electronic health records.
Real-World Analysis of Voxelotor Outcomes Finds No Clear Sign of Harm, But No Real Benefits
New data finds that the sickle cell drug voxelotor was not associated with any clear indicator of harm to patients, but had limited benefits overall. The findings were based on data pulled from the ASH Research Collaborative (ASH RC) Data Hub.
Using Conventional Definitions, Some High-Risk Multiple Myeloma Patients May Be Missed
Research using data from the ASH Research Collaborative (ASH RC) Data Hub aims to define “functional high-risk” multiple myeloma, suggesting that newly diagnosed patients whose disease progresses within 30 months of a triplet or quadruplet drug regimen have poorer outcomes than those who progress after 30 months.
Artificial Intelligence Accurately Predicts Chronic Kidney Disease in Individuals with Sickle Cell Disease
New research showcases a first-of-its-kind artificial intelligence algorithm to examine the dynamics underlying chronic kidney disease in individuals living with sickle cell disease. The algorithm employed data from the ASH Research Collaborative (ASH RC) Data Hub.
Clinical Trial Literacy Gaps Exist Among Lived Experience Experts
The ASH Research Collaborative (ASH RC) conducted research among individuals involved in its national and local sickle cell disease community advisory boards (CABs) to assess clinical trial literacy, and found that even among engaged advocates, there were knowledge gaps about clinical trials.
ASH Research Collaborative Multiple Myeloma Data Hub Award
The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.
Iron Overload Remains Prevalent in Individuals with Sickle Cell Disease Despite Diagnosis and Treatment Guidelines
New research presented at the 2025 American Society of Hematology (ASH) Annual Meeting and Exposition in Orlando, Florida, finds that iron overload is a prevalent problem for individuals receiving blood transfusions to treat their sickle cell disease.
Study Finds Potential Protective Uric Acid Range in Individuals with Sickle Cell Disease
The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.
ASH RESEARCH COLLABORATIVE
The ASH Research Collaborative (ASH RC) is a non-profit organization established by the American Society of Hematology (ASH) in 2017 to improve the lives of people affected by blood diseases by fostering collaborative partnerships to accelerate progress in hematology. Learn more about ASH RC