Published on: February 4, 2025

Filling the Gaps: The Urgent Need for Sickle Cell Disease Data

This article is part of a Health Affairs Forefront series on “The Future of Sickle Cell Disease Research and Care” with support from the American Society of Hematology. The articles in the series are independently reviewed and edited by Health Affairs Forefront.

Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

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The Future of Sickle Cell Disease Research & Care

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