Sickle Cell Disease Research Network

Facilitating Sickle Cell Disease Research to Improve Clinical Outcomes

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Community Advisory Board Impact Report

People living with sickle cell disease (SCD) bring expertise that can change how research is designed and carried out. Across the ASH Research Collaborative® (ASH RC) SCD Research Network, Community Advisory Boards (CABs) put that expertise into practice, working alongside researchers to help research better respond to community needs.

Community Voices Shaping Sickle Cell Disease Research: 2026 CAB Impact Report

This report is ASH RC’s first community-facing report documenting this work. Created with members of the National Community Advisory Board (NCAB), it shares examples of what community partners contributed and how their input helped shape research.

Through local CABs and the NCAB, people living with SCD, caregivers, advocates, and community partners help shape research questions and strengthen the ways studies engage participants. The report shows what this partnership looks like in practice, and why it matters for the people research is intended to serve

Community Advisory Board Impact Report

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