ASH Research Collaborative News

Social Disadvantage May Drive Difference in Myeloma Outcomes

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The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

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Study Finds Association Between Increased Proteins in Urine and Venous Thromboembolism in Individuals With Sickle Cell Disease

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The American Society of Hematology (ASH) has expanded its awards and mentorship programs to address the threats to funding for hematology research and to protect the pipeline of new hematologists entering the field. In these extraordinary times, the ASH RC is uniquely positioned to advance ASH’s Multifaceted Approach to Research and Regulatory Challenges in Hematology (MARRCH) initiative by expanding and diversifying its Multiple Myeloma (MM) Research Network.

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ASH Research Collaborative to Present Data at 67th ASH Annual Meeting and Exposition

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Presentations highlight how real-world data accelerate research and improve hematology care.

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Accelerating Novel Therapies for Sickle Cell Disease with RWE: ASH RC Data Hub as a Strategically Coordinated Registry Network

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Real-world evidence (RWE) has been used to improve quality of care, accelerate innovation, and evaluate emerging therapies for drugs, devices, and biologics. The Coordinated Registry Network (CRN), aggregating and linking highly curated patient data, has emerged as a model for RWE generation that has guided the development of the ASH Research Collaborative® (ASH RC) Data Hub. With the aim of bolstering research, enhancing clinical care, and expediting evidence generation using RWE, ASH RC, and the Innovative Genomics Institute (IGI) launched a joint initiative, “Accelerating Innovations for Sickle Cell Disease (SCD) with Real-World Evidence,” to evaluate and make recommendations to the Data Hub.

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ASH Research Collaborative (ASH RC) Sickle Cell Disease (SCD) Data Hub Award  

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Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

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ASH Research Collaborative’s Real-World Evidence Consortium for SCD Goes Live with Duke Clinical Research Institute

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Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

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An Agenda for Sickle Cell Disease Research That Encompasses Lived Experience

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Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

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Request for Applications (RFA) Open

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The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.

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Filing the Gaps: The Urgent Need for Sickle Cell Disease Data

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Sickle cell disease (SCD), a condition that remains widely misunderstood, underresearched, and underfunded, is the most common inherited blood disorder, affecting an estimated 100,000 people in the United States.

Read more

ASH RC Data Hub’s Multiple Myeloma Program Accelerates Research

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The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.

Read more