The ASH Research Collaborative (ASH RC) Data Hub, which was developed to facilitate research and quality improvement through real-world data, accurately correlates sickle cell disease (SCD) genotype with verified diagnoses, validating existing and future clinical data in the ASH RC’s Data Hub, according to new research presented today at the 66th ASH Annual Meeting and Exposition.
ASH Research Collaborative study finds that only one-quarter of patients living with SCD are prescribed a DMT
Presentations highlight how real-world data accelerate research and improve hematology care.
The ASH Research Collaborative (ASH RC) Data Hub’s Multiple Myeloma Program can feasibly collect patient data from its participating sites for prospective evidence generation, according to new research presented at the 66th ASH Annual Meeting and Exposition.
The ASH Research Collaborative® (ASH RC) is proud to announce its Board of Directors, a diverse group of hematologists and data, health systems, and informatics experts committed to advancing critical research and accelerating positive change for people living with hematologic conditions.
The ASH Research Collaborative (ASH RC) and the Reagan-Udall Foundation for the Food and Drug Administration (FDA Foundation) are launching the Real-World Evidence Consortium for Sickle Cell Disease (SCD) to develop consensus recommendations on clinical outcomes important to treating people with SCD and apply those standards to real-world data sets.
The American Society of Hematology and the ASH RC are happy to announce the launch of the Pilot Sickle Cell Disease Learning Community. The Sickle Cell Disease Learning Community is focused on improving the care and outcomes of people living with Sickle Cell Disease through the adoption of evidence informed best practices.
Grant of $400,000 to help expand sickle cell disease real-world data gathering in the U.S.
The ASH Research Collaborative (ASH RC) has announced the first 10 clinical research consortia to join the ASH RC Sickle Cell Disease Clinical Trials Network.
The ASH Research Collaborative and International Society on Thrombosis and Haemostasis Define Thrombosis-Related Endpoints to Inform COVID-19 Clinical Trial Design.
